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Discussion

Option 2: You are caring for a Michael 11 years-old with Benjamin Button’s disease (progeria). Michael asks you if he is dying. He has seen the changes in his body. He knows that he has some kind of rare disease that is causing the problems, and that  he comes to the hospital to management of the symptoms. He is currently being treated for cardiac and renal disorders. He has been hospitalized often but with this hospitalization his parents don’t ever leave is room. One of them is always with him.  Discuss how you would respond to Michael. What resources could you use to assist in the conversation?

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